Anastasia is doing fantastic in almost every way! In particular, her heart has completely
healed. What better news could we ask
for? She has a residual “patch leak”
from the VSD repair and a slight valve leak, but the cardiologist said other
than that (oh, and the ginormous pacemaker) her heart looks completely normal.
I have been waiting for those words for a very long time now
and feel such a sense of relief to know that her precious little heart has
finally recovered. While I am not overly
comfortable with the blasé mention of the valve leak (I have been to this movie
before…they don’t always let on about the significance of what they see on the
echo) I just have to trust that she is not in harm’s way and we do not need to
worry about her heart.
Okay, that’s a
bunch of crap, but sounds good, doesn’t it?!?!
I will be calling for the written echo report so I can see the details
in writing so I can research until my heart is content. I really do; however, feel that she is okay
and the leak is not of significance. She
was taken off of Lasix (diuretic) and was cleared for annual visits. She is using her pacemaker 6.7%, which is
more than ever before, but still hardly at all in the grand scheme of
things. They adjusted her settings again
to see if perhaps she just has a lower resting heart rate. We will do a phone check in 3 months to see.
Alexander and Anastasia both started at their new school
this week (Montessori Academy). Annie has
adjusted well, but Alex is having a bit of a hard time, which is totally
expected for a 3 year old. It stresses
me out and makes me worry beyond belief, but I am trying to stay positive and
remember that change is hard but eases in time.
It is a fantastic environment for
both kiddos so hopefully he will settle in soon. I imagine it is confusing and difficult to be
in a room full of complete strangers and new set of expectations. Luckily, Annie is in a room with a friend
from her other daycare, so at least she has one familiar face!
I am having to do some travel for work, so life is even more
hectic than normal. It’s great to have
new clients and opportunities, but also very stressful. One of my new clients is in Irvine, CA, so
maybe I will get to go to Disneyland on one of my trips. Nothing like seeing the Mouse to make you
smile!
