Anastasia is doing fantastic in almost every way! In particular, her heart has completely healed. What better news could we ask for? She has a residual “patch leak” from the VSD repair and a slight valve leak, but the cardiologist said other than that (oh, and the ginormous pacemaker) her heart looks completely normal.
I have been waiting for those words for a very long time now and feel such a sense of relief to know that her precious little heart has finally recovered. While I am not overly comfortable with the blasé mention of the valve leak (I have been to this movie before…they don’t always let on about the significance of what they see on the echo) I just have to trust that she is not in harm’s way and we do not need to worry about her heart.
Okay, that’s a bunch of crap, but sounds good, doesn’t it?!?! I will be calling for the written echo report so I can see the details in writing so I can research until my heart is content. I really do; however, feel that she is okay and the leak is not of significance. She was taken off of Lasix (diuretic) and was cleared for annual visits. She is using her pacemaker 6.7%, which is more than ever before, but still hardly at all in the grand scheme of things. They adjusted her settings again to see if perhaps she just has a lower resting heart rate. We will do a phone check in 3 months to see.
Alexander and Anastasia both started at their new school this week (Montessori Academy). Annie has adjusted well, but Alex is having a bit of a hard time, which is totally expected for a 3 year old. It stresses me out and makes me worry beyond belief, but I am trying to stay positive and remember that change is hard but eases in time. It is a fantastic environment for both kiddos so hopefully he will settle in soon. I imagine it is confusing and difficult to be in a room full of complete strangers and new set of expectations. Luckily, Annie is in a room with a friend from her other daycare, so at least she has one familiar face!
I am having to do some travel for work, so life is even more hectic than normal. It’s great to have new clients and opportunities, but also very stressful. One of my new clients is in Irvine, CA, so maybe I will get to go to Disneyland on one of my trips. Nothing like seeing the Mouse to make you smile!