I wasn't expecting a cake walk for her, but I wasn't anticipating it to be this bad either. I thought for sure that this (a supposedly mere 3 hour procedure.....HA!) would not be nearly as rough as any of the others, but this is turning out to be the worst (outside of her OHS, of course).
We spent the better part of the day yesterday chasing her pain and trying to make her comfortable, both of which seemed to be loosing battles. Even when I was the one holding her she would just cry, "Mommy, Mommy, Mommy." Heart breaking! Unfortunately they had to come re-do her dressings and adjust her splints, which was very, very traumatic for her (and the rest of us too). At that point the nurse relented and drugged her up.
By 4 pm they had given her so many drugs she was high as a kite and her pain was under control. That's not necessarily a good thing either though (the high as a kite part), although it did provide us with some much needed comic relief. Anyway, we finally got to move out of the PICU to a regular room last night around 5.
This morning she got her dressings changed again, drain tubes removed (OUCH), and orders written for discharge....YaHoo!!!! She is still very irritable (who wouldn't be) but I do think her pain is under control. Hopefully we will see big improvements as soon as we vacate this joint! The staff here is amazing, but there is not a comfortable thing about this hospital. Guess we are spoiled with Vandy Children's!
Back on the home front Alexander is have an absolute BALL with his aunties! It is so very hard to be away from him but I am comforted knowing that he is having so much fun.
She was in the process of the dressing change and splint adjustment:
Right arm without dressing....
Watching Caillou with Gee early this morning:
This is day 2 post-op, and each passing day will bring improvement for Annie. She is a mighty brave little angel and she will get through this with flying colors. You, Stephen, and your mom will get medals for valor for sure. Yes, your Alex is having a blast with his aunties, and he's such a bright kid - he keeps everyone entertained and amazed with his precociousness. We played six games of Hi-Ho Cherry-O, and Alex won every game. We also played lots hide and seek with him hiding under the big brown blanket! And we played outside where he especially enjoyed riding his motorcycle up and down the sidewalk. He also really enjoys that cycle that goes down the ramp. A neat plaything.
ReplyDeletePlease know that we are praying for you all and we are comforted by the knowledge that Annie's future is being dramatically enhanced with these remarkable procedures and therapies. Love to you, Stephen, Annie and your mom.
Mimi and Papa
I am hoping today is better. It is absolutely heartbreaking when they are in pain and we can't really do anything about it but cuddle them :(
ReplyDeleteThanks for sharing updates about Annie's progress. Hope she feels better soon and you guys have a safe trip back home!
ReplyDeleteLove Sarah